Through the past ten months of this neurological disorder I have had people telling me all the time, how well I am dealing with it, and I’m so good and such an inspiration. It’s lovely to be told those things but honestly I don’t feel that I am any of those things!
For me it’s just another medical problem that has come up, and another hurdle to get over in life and I always say that I just have to get on with it. I have this condition and there is no other way of getting over the hurdle apart from just facing it head on, accepting it and going for it and I will eventually reach the end and get better.
I have always said that for as long as I can remember through all the different illness I have had. They are just another hurdle I need to get other, and yes of course it is very annoying and frustrating when I get over one and then find myself facing another, but there is only one way to get over that hurdle and you can’t just go around it!
As a child I always said I wanted to be normal even just for a year, where I didn’t get ill and there was no hospitals or medication to take. But as I have gotten older I have seen that yes it was hard growing up with hospitals being my second home, but I wouldn’t really change any of it or go back and do it differently. I do get annoyed that I had some of the illnesses that I did but, if my life was different then I may have not have done some of the things I have and be going down the road I am of setting up my own dance company.
Growing up with hospitals being your second home can be hard because as a kid there is so much you want to do, but you end up missing out on due to being too poorly or another hospital appointment. But it’s like having another family you go to and you get to know a lot of people at the hospitals, they almost do feel like another family and I look forward to seeing them again when I go and we talk about what I’ve been up to and the plans I have. It in a way makes the whole experience a lot easier when you know the staff well enough, that you feel comfortable to be there and have a good old chat and chat up with them.
You meet new people as well and make friends and it’s funny but I have even learnt a lot about different medical conditions and hospital talk then most people my age.
I'm nearly twenty and yes i still get annoyed when i get hit with another medical condition, or i have to turn down plans because of hospital appointments. But i can say that i couldn't imagine my life any different and wouldn't want it any different, i am learning to accept my life how it is and to just keep on facing the hurdles as they come.
Always remember to not give up on life or anything, and to follow your dreams as they can be possible if you follow them, really want them and believe they can happen! You only live once and you never know what is going to happen tomorrow, you may not be having a good time in your life right now but things don't stay that way forever!!
For me it’s just another medical problem that has come up, and another hurdle to get over in life and I always say that I just have to get on with it. I have this condition and there is no other way of getting over the hurdle apart from just facing it head on, accepting it and going for it and I will eventually reach the end and get better.
I have always said that for as long as I can remember through all the different illness I have had. They are just another hurdle I need to get other, and yes of course it is very annoying and frustrating when I get over one and then find myself facing another, but there is only one way to get over that hurdle and you can’t just go around it!
As a child I always said I wanted to be normal even just for a year, where I didn’t get ill and there was no hospitals or medication to take. But as I have gotten older I have seen that yes it was hard growing up with hospitals being my second home, but I wouldn’t really change any of it or go back and do it differently. I do get annoyed that I had some of the illnesses that I did but, if my life was different then I may have not have done some of the things I have and be going down the road I am of setting up my own dance company.
Growing up with hospitals being your second home can be hard because as a kid there is so much you want to do, but you end up missing out on due to being too poorly or another hospital appointment. But it’s like having another family you go to and you get to know a lot of people at the hospitals, they almost do feel like another family and I look forward to seeing them again when I go and we talk about what I’ve been up to and the plans I have. It in a way makes the whole experience a lot easier when you know the staff well enough, that you feel comfortable to be there and have a good old chat and chat up with them.
You meet new people as well and make friends and it’s funny but I have even learnt a lot about different medical conditions and hospital talk then most people my age.
I'm nearly twenty and yes i still get annoyed when i get hit with another medical condition, or i have to turn down plans because of hospital appointments. But i can say that i couldn't imagine my life any different and wouldn't want it any different, i am learning to accept my life how it is and to just keep on facing the hurdles as they come.
Always remember to not give up on life or anything, and to follow your dreams as they can be possible if you follow them, really want them and believe they can happen! You only live once and you never know what is going to happen tomorrow, you may not be having a good time in your life right now but things don't stay that way forever!!