Normal, what is normal? For 19 years normal for me was a life of medication, and hospitals being a second home. I learnt to accept that as my normal life, but as i have got older and i want to be doing more things, I think to myself, why? Why does this have to be my normal?!
People say to me, but what is normal? Who really has a normal life! I don't want a perfect life as i know that doesn't happen and i wouldn't want that. What i want is a life where I don't have to worry about hospitals or doctors telling me what i can and can't do in life. Having to miss out on so much with family and friends, and enjoying life.
I'm not saying i don't enjoy life as i do, and i have meet and made some of the best and most amazing friends i could have ever asked for. I just get so tired of it all building up over the years, and stopping me from doing the things i want to do!
But i know i am not alone! There are so many people out there who feel the same, and have spent there life saying the same thing. Wishing that they didn't have to be ill all the time and be stuck in hospital. There are children coming into this world, and straight away having to fight for their life and, them being told they have some medical condition that will affect them for the rest of their life.
We have to remember that we are not alone in the way we feel and there are others out there. Others to talk to who feel the same way, and who understand what you are going through. You just have to find them! One of my friends once said to me, "imagine what your life would be like if you hadn't of been ill" and i did and i thought to myself, what would my life be like if i hadn't been through what i had. Would i have gone on to do what i am doing now? Met and made all the friends i have? Honestly i don't think i would have!
So i think and look back at what i have done, and who i have meet and think well maybe having a life where i am ill and in hospital a lot, that may not be as bad as i think as i wouldn't have gone on to do what i have done, and also having the life i do it makes you look at life in a completely different way, and i love that! I try and take everyday as it comes, as i know that it can change just like that, and i don't know what will happen tomorrow!
So yes it is hard having a life where a hospital becomes your second home, but remember your not alone for one, and there is always someone out there to talk to who is going through the same thing. Also try and think what would your life be like if you wasn't, and would it be quite as different as you may think? We have to think it will get better!
People say to me, but what is normal? Who really has a normal life! I don't want a perfect life as i know that doesn't happen and i wouldn't want that. What i want is a life where I don't have to worry about hospitals or doctors telling me what i can and can't do in life. Having to miss out on so much with family and friends, and enjoying life.
I'm not saying i don't enjoy life as i do, and i have meet and made some of the best and most amazing friends i could have ever asked for. I just get so tired of it all building up over the years, and stopping me from doing the things i want to do!
But i know i am not alone! There are so many people out there who feel the same, and have spent there life saying the same thing. Wishing that they didn't have to be ill all the time and be stuck in hospital. There are children coming into this world, and straight away having to fight for their life and, them being told they have some medical condition that will affect them for the rest of their life.
We have to remember that we are not alone in the way we feel and there are others out there. Others to talk to who feel the same way, and who understand what you are going through. You just have to find them! One of my friends once said to me, "imagine what your life would be like if you hadn't of been ill" and i did and i thought to myself, what would my life be like if i hadn't been through what i had. Would i have gone on to do what i am doing now? Met and made all the friends i have? Honestly i don't think i would have!
So i think and look back at what i have done, and who i have meet and think well maybe having a life where i am ill and in hospital a lot, that may not be as bad as i think as i wouldn't have gone on to do what i have done, and also having the life i do it makes you look at life in a completely different way, and i love that! I try and take everyday as it comes, as i know that it can change just like that, and i don't know what will happen tomorrow!
So yes it is hard having a life where a hospital becomes your second home, but remember your not alone for one, and there is always someone out there to talk to who is going through the same thing. Also try and think what would your life be like if you wasn't, and would it be quite as different as you may think? We have to think it will get better!