So finally after nearly five months i am actually getting somewhere!
I have the first building block to getting a full diagnosis, and i am so pleased that i am now seeing the right Dr and getting somewhere. I got to the National Neurology Hospital and saw a specialist there, who was able to really help and give me some answers to what is going on.
It looks like there could be a few things going on and all together can be making one big problem. I have to have another scan of my lumbar spine to see if i have damaged it at all, and i have some other tests coming up as well. This is all to make sure that we are not missing anything, i have to see a specialist about my hearing as i was told it is due to nerve damage but not what has caused that damage. So there could be two problems straight away that could be impacting on what is going on, but i was also told about another condition i could have...
...That is a condition called Functional Neurological Disorder (FND) this could have be triggered after the surgery i had back in 2010, and just not come out yet. But after that surgery i pushed myself a bit too quick to dance again and then i had two scares where they thought i may have relapsed, all that together could have started it all off. Then i went to university and had dislocated my hip, this on top is all the condition needed to come out fully,.
The brain then starts to go into panic mode every time i get a lump or bump, or ill and thinks that it is having a relapse and the cancer is returning. It thinks it has to just fight and fix everything to get better, this then causes the unconscious part of the brain to take over. My Dr was explaining to me how it works. When this happens you no longer have control of your brain and what you want to do, It is too much and the brain essentially starts to shut down. The messages are not being sent to and from the brain, and the messages that are being sent through, are not getting sent properly and it is all jumbled up in a way that the body can't make sense of it.
We can treat it but it won't be an easy or quick thing, it is going to take me a long time to get back to how i was before. I need to completely retrain my brain, and almost restart it again to get it back to how it should be working. I have to have special physiotherapy who will help me in doing this, and they treat it almost like someone who has had a stroke.
It is scary thinking that i have and still may losing that control of my body, and each day just watching myself not getting better and watching this get worse. But it is nice and a slight relief that we have an idea of what is going on, and can now start working on how to get better.
Being ill is tough and even more tough when your young, or have had to put up with illness your whole life. But i think in a way it can make us a stronger person and sometimes a better person, as we know that things can change like that, and we know not to take life for granted and to enjoy it while you can. You never know what is waiting around that corner, or when your whole life can be turned upside down and changed in a second.
You just have to keep fighting and take each day as it comes, and make the most of it!
I have the first building block to getting a full diagnosis, and i am so pleased that i am now seeing the right Dr and getting somewhere. I got to the National Neurology Hospital and saw a specialist there, who was able to really help and give me some answers to what is going on.
It looks like there could be a few things going on and all together can be making one big problem. I have to have another scan of my lumbar spine to see if i have damaged it at all, and i have some other tests coming up as well. This is all to make sure that we are not missing anything, i have to see a specialist about my hearing as i was told it is due to nerve damage but not what has caused that damage. So there could be two problems straight away that could be impacting on what is going on, but i was also told about another condition i could have...
...That is a condition called Functional Neurological Disorder (FND) this could have be triggered after the surgery i had back in 2010, and just not come out yet. But after that surgery i pushed myself a bit too quick to dance again and then i had two scares where they thought i may have relapsed, all that together could have started it all off. Then i went to university and had dislocated my hip, this on top is all the condition needed to come out fully,.
The brain then starts to go into panic mode every time i get a lump or bump, or ill and thinks that it is having a relapse and the cancer is returning. It thinks it has to just fight and fix everything to get better, this then causes the unconscious part of the brain to take over. My Dr was explaining to me how it works. When this happens you no longer have control of your brain and what you want to do, It is too much and the brain essentially starts to shut down. The messages are not being sent to and from the brain, and the messages that are being sent through, are not getting sent properly and it is all jumbled up in a way that the body can't make sense of it.
We can treat it but it won't be an easy or quick thing, it is going to take me a long time to get back to how i was before. I need to completely retrain my brain, and almost restart it again to get it back to how it should be working. I have to have special physiotherapy who will help me in doing this, and they treat it almost like someone who has had a stroke.
It is scary thinking that i have and still may losing that control of my body, and each day just watching myself not getting better and watching this get worse. But it is nice and a slight relief that we have an idea of what is going on, and can now start working on how to get better.
Being ill is tough and even more tough when your young, or have had to put up with illness your whole life. But i think in a way it can make us a stronger person and sometimes a better person, as we know that things can change like that, and we know not to take life for granted and to enjoy it while you can. You never know what is waiting around that corner, or when your whole life can be turned upside down and changed in a second.
You just have to keep fighting and take each day as it comes, and make the most of it!